Sorry I haven’t posted about Brian’s treatments yet. Monday was obviously exhausting. Tuesday was busy, but I did try to start this post then, but I just couldn’t find the words or the mental space to type it out. Today was busy and productive, filled with work and cleaning and hosting our Community Group at our house. And here it is, after 10 p.m. and I’m just now writing this. Brian is fast asleep in bed and I just couldn’t fall asleep yet. So, here I am.
Monday was Columbus Day, and I am chalking it up to that fact that the Cancer Center was so busy. I guess they are generally busy on Mondays, but considering it was a holiday, I guess everyone decided they’d spend the day at the Cancer Center. I’m not sure exactly why it was so busy, but I do know that I haven’t seen the waiting room that full since one of the first times I ever went there…if ever. I was flooded with some of the same feelings I had the very first time I went to the Cancer Center with Brian over a year ago. It feels like you’re walking into a war zone. People are all around you without hair, with masks, hunched over walking with a cane or walker or with another person’s assistance. There are people who are skin and bones, faces pale, and those who are swollen with steroids…no resemblance to what they normally look like. This thing like cancer is wreaking havoc on people, and the rest of the world seems to go on with life without any thought of it.
Monday’s appointment was longer than normal, and longer than scheduled, but I some what expected it. In fact, I even brought a backpack full of our books, magazines and snacks. I was prepared for anything. You never know how long you might be there, or what may happen in the mean time. It’s always better to be prepared. We got to the KU Cancer Center around 12:45 and checked in, and they called us back shortly after that. When we go to the Cancer Center, we go to the BMT (Bone Marrow Transplant) department. There are two areas in there…the exam rooms and the treatment rooms. We always go to the exam rooms when we go in to meet with the doctors for blood work or PET results, etc. The only time we’ve ever been in a treatment room was last June when Brian had pain in his liver and we went into the clinic without an appointment and they just moved us from room to room, depending on what was available at the time.

On Monday, since we were there for chemotherapy treatment, we were put into a treatment room. These rooms actually have their perks! Instead of an exam table for the patient, they get to sit in recliners! And they also have TV’s with cable! As soon as we got into the room, Brian got the TV turned on. They don’t have a wide variety of cable channels, but they DO have the Food Network..so we watched a bunch of delicious food being prepared the whole time. (We probably should have had lunch before we went, cuz the TV made us hungry!!)

After a little while, the nurse came in and drew Brian’s labs, and then we had to wait for quite a while to get those labs back. We also mentioned something about the treatments and they said “oh, we weren’t sure if you were getting that today or not.” ….Uh, hello?? Oh, the healthcare industry. Sometimes I just wonder how people make it out alive from those places.
Ha. The doctor (Brian’s favorite doctor) also stopped in to talk to us for just a few minutes to see if we had any questions. We were so glad that we got to talk to Dr. Abhyankar…..we saw Dr. McGuirk (Mr. Doomsday!!) when we first got there and were sure that we’d have to meet with him instead. So thankfully, Dr. Abhyankar was there, as well. He definitely treats Brian like he’s a person, not just a case.
Once Brian’s labs came back, the pharmacist came up to talk about all of the possible side effects of the drug (not to mention the rare, but scary ones…anaphylactic shock, etc.!!!). After all of that, we finally were able to get to the treatment part (did I mention this was about 2 hours after we got there? And we were scheduled to be there for only an hour!). The nurse started the pre-meds (one was Zofran, I can’t remember the other). These meds are for nausea, vomiting, sick stomach, etc. They are used to hopefully prevent or calm any sick feelings while the drug is being administered. These drugs are all given as an IV through the port that Brian has in his right shoulder. Once that finished (it took about 15 minutes), they hang up the bag of chemo and get it all hooked up and hit start.

This is probably one of the more stressful/anxious moments (especially doing a new drug for the first time). You never know if he will be allergic to it or have any crazy reactions. After a few minutes, and seeing that he was fine, you start feeling a little better about it. The chemo takes 30 minutes to complete.
Once that was finished, it didn’t take long to wrap things up. We headed home around 4:30 and we stopped by Papa John’s to get pizza on the way home. That night we just watched some movies and went to bed. His stomach hurt some that night, but he wasnt sure if it was just the pizza or from the chemo.
Yesterday (tuesday) morning, I told Brian that I felt like it should already be Thursday. We were both SO EXHAUSTED!!! Seriously..i’ve already used all of my coffee budget for this week…and I could seriously go for a few more coffee’s from Starbucks (I wish they would give me a few sympathy latte’s! haha!)!
Brian’s stomach was pretty upset on Tuesday..not painful, and not to the verge of ever vomiting, but definitely uncomfortable and a bit nauseous. He’s been taking tums occasionally. He’s also getting tired a lot easier, and his body is tired by the end of the day and feels like he’s done hours worth of physical labor.
Today (Wednesday) he said his stomach felt a little better, but it’s definitely not back to normal. He was also exhausted after a full day of work and then his Men’s Bible Study tonight. (Have I ever mentioned how PROUD I am of him…he is SUCH a hard worker when I would TOTALLY be taking sick days in his shoes!).
We’re hoping that Brian will feel back to normal in a few days. And then things will start all over again November 2 at our next treatment appointment. It will definitely be an adjustment to get used to this new season. So anyways, that’s how things are going. We just take it a day at a time.